I'm new and need advice...

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I'm new and need advice...

Postby Plain Paige » Mon Jan 16, 2012 5:23 pm

Hi everyone< my name is Paige. Four years ago, I was diagnosed with Cancer and I'm very blessed to be in remission. In addition to other health problems, I was left with a lot of pain, much of it made worse or caused by the chemo. I was on regular pain meds, but asked the docs if there was a medication that could help my pain but not knock me out. And, the Methadone years began. It worked wonderfully for my pain. I took 60 mgs a day. I'm not sure if that's a high dose or not. I took it as prescribed. But, towards the end, I still hurt a lot, especially at night when I lay in one position for a long time. My Oncologist prescribed during Chemo, then transferred me to a pain specialist for the next 3 yrs. He thought that perhaps I'd developed "Hyperanalgesia," where the pain meds make the pain worse when you've been been on them for a while. We made a plan to detox me back in July '11, but Osteoporosis contributed to a severe broken foot. We put it off... Last September, my doc informs me he will no longer be Rx'ing Controlled Subs, so I say, Ok, I don't want to go thru the humiliation of looking for another doctor (do any of you find that you are treated like crap when medical professionals learn you are on Methadone? I did.), so I'll detox and see if it is Hyperanalgesia. My doc referred me to a PM Specialist who prescribed Suboxone.
I had no idea what I was in for! And, to complicate matters, I began the Suboxone too soon. It threw me into full blown withdrawal. The experience was awful, you guys all know the drill. And try as I might, everytime I try and take Suboxone, it skyrockets my blood pressure and gives me an awful headache.
So, my questions are THIS/THESE... I'm not an advocate of any drug really, so please don't tell me to piss off. Is it crazy thinking for me to wonder why I did this? The Methadone was cheap, I took it like I was told, except for the night time, it worked I was at least able to play with my grand kids. I could sleep and the pain caused by too much time in one position got better, once I changed positions, etc... Are there any alternatives to Methadone/Suboxone, where the medication doesn't hit you and knock you flat on your butt? I tried another Suboxone this AM and I've had a migraine the whole day. This crap is killing me! I've turned to the Internet out of desparation.... My last dose of Methadone was Dec 11th, 2011 :boobshake: and a Merry Freakin' Christmas it was too! But, I'm alive and that's a gift. Any thoughts, suggestions, etc... Thanks in advance... P
Last edited by Plain Paige on Sun Feb 26, 2012 12:57 am, edited 2 times in total.
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I'm new...

Postby Plain Paige » Mon Jan 16, 2012 5:47 pm

Hi everyone, I'm Paige.

Does anyone know if there have been any studies, reports of Long Term use of Subutex or Suboxone causing Cancer? I'm not looking for lawsuit material, I'm in remission from Lymphoma. Everyday, I see a new advertisement for different drugs contributing to this and that... I have just recently detoxed from Methadone to Suboxone but, I'm having a really hard time with the side effects, mainly Migraines and My blood pressure going up. I've taken one tablet in the last 3 days, just to see if it was just me WANTING to hate this drug. And, I've had a headache, all day.
I'm an older woman, 43. And, I've had a lot of health problems. I stopped my hormones because they can be a carcinogen, I know my poor husband probably thinks about slipping me a few every now and again. :oops: But, was wondering if anyone knew, or knew of a Medical Site that might list the problems caused by long term use of the Bups?
Thanks,
Paige
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Re: I'm new...

Postby cheeps » Mon Jan 16, 2012 10:17 pm

Paige....how much are you on per day?

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Re: I'm new and need advice...

Postby wastedtime » Tue Jan 17, 2012 6:02 am

Hi Paige,First off i highly recommend getting a memory foam topper for your bed.I love mine and I don't hurt as much as I used to sleeping on it.it really helps with pressure points.I used to toss and turn all night until i got that memory foam topper.i got it at overstock.com and would not trade it for anything.What kind of pills were knocking you out?
Peace, Goldie
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Re: I'm new and need advice...

Postby Plain Paige » Tue Jan 17, 2012 9:54 am

Thanx for responding Goldie and I will try the Memory Foam Topper. The first Pills I was Rx'd were Percocet, Roxicet... My first Grandbaby was due and born during Chemo ( the LIGHT of my LIFE!!) < And we have a total of 7 grandkids now, 4+ yrs later. But, I knew I'd never get to babysit if I couldn't stay awake. In some ways, it was good. I'd go in for Chemo and snore so loud, that was another indication that I was gonna be knocked out for 8 months. When my labs took a nose dive and I began getting the Neupogen injections that stimulated my bones to make a bunch of WBC's, was when my pain got really bad. I was like 38 and I walked all bent over. They changed my meds around the half way point of Chemo...
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Re: I'm new...

Postby Plain Paige » Tue Jan 17, 2012 10:05 am

Hi Cheeps,

My Dr. wrote that I could take 1 8mg tablet under my tongue 3 times a day. All I have to do, if I want a migraine, is take 1 tablet in the morning and I have a headache the rest of the day. Not only does that suck for obvious reasons, but the mornings are when I hurt the worst. I must admit, when I took it daily, it finally started to help my back/hips/etc... But, the rest of me felt like crap, so....?
I can only stand to take this medication ONCE daily, and that's just because that's all of the side effects I can handle. I tried taking it as prescribed and I was up for days, felt all tense. I can remember the doc saying this will make you sleepy... I does NOT make me the least bit sleepy!!! Maybe it's the rapid switch from 4 years of Methadone to the Suboxone? IDK, I just know I hate this drug.
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Re: I'm new...

Postby xenofears » Tue Jan 17, 2012 10:21 am

So why are you taking it, just to stave off w/d? I'm confused.. Do you need pain relief... but the methadone was no longer working? Why was the Suboxone prescribed, exactly, detox or pain relief? Buprenorphine is awful as a pain management drug. You'd probably be better off (than even methadone) with a normal short-acting opiate, has no doctor suggested that to you? Or is your goal to detox for now? You might try a quick (slowed down as necessary) taper if so...

32mg is a boatload of buprenorphine, far beyond what anyone actually needs. Even 8mg is plenty. If 8mg is making you feel like shit, I'd suggest trying (possibly much) less. But switching from 60mg of Methadone to any amount of Suboxone is going to make anyone feel like shit...

Sorry to hear about your health issues..
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Re: I'm new and need advice...

Postby gillabug » Tue Jan 17, 2012 11:39 am

welcome Paige... I second the memory foam topper.. Got mine at Overstock too! lol

I'm just glad you are in remission! I can't believe your dr.'s just left you to fend for yourself like this.. That's awful. I have no words of wisdom.. maybe someone else has some.. meanwhile, stick around.. Nice to meet you.
Never make anyone a priority when all you are to them is an option...

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Re: I'm new and need advice...

Postby cheeps » Tue Jan 17, 2012 1:57 pm

gillabug wrote:welcome Paige... I second the memory foam topper.. Got mine at Overstock too! lol
.



Me too! Overstock is da bomb for bedding.

Paige.....Good to see you in here! 8-) 8-)
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Re: I'm new and need advice...

Postby cheeps » Tue Jan 17, 2012 2:12 pm

You really have been for a ride! Are you taking any muscle relaxers? They help me with pain at night. I have neck and back issues...I was on methadone for ten years in PM.

I think you should get off everything if the sub isn't helping. But if you find out that the pain is intolerable....you may need something but at a MUCH lower dose....even if you decide on the methadone...get what the dr orders but use a very small amount. Methadone is a bitch to get off of as you know. shame on the sub dr for sending you into hell when you switched. What an idiot.

Even 10 mg of methadone helped my pain. Before I had surgery I had gotten up to 20 mgs twice a day. Not much considering ten years in PM. It's so hard to get off of and it ruins your brain....I went to a detox center in FL. It took 14 month of aftercare before I was 80%.

Do you work? Can you stay at home?
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Re: I'm new and need advice...

Postby syd » Tue Jan 17, 2012 5:57 pm

HI Paige & welcome.

A couple of questions, if u dont mind.

Did you detox completely off the methadone or did you taper down from 60mg, then switch to sub?
What dose of sub are you currently on?

I developed hyperanalgesia, on methadone. I too was walking all bent over/limping/bone spurs. After I got off, that got 90% better. I wasnt on methadone for pain management, but I sure developed joint pain while on it.
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Re: I'm new...

Postby Plain Paige » Wed Jan 18, 2012 10:27 am

Thanks Xeno, yes I was on Methadone 60mgs per day for pain relief, during and after Cancer. Chemo has cured my Lymphoma, but my bones are shot out. My Dr. stopped Rx'ing controlled substances and there was also some question as to whether or not I was developing the 'Hyperanalgesia.' When opiates make the pain worse instead of better. For the most part, Methadone worked well. Just during the night, when I'd lay in one position, pain would wake me up a lot. And, the mornings were bad too. But, during waking hours, Methadone did what it should.
The combination of those things, and the fact that when you go to a new Dr., you are treated with such suspicion, made me want to just see if I could do without Methadone. I knew nothing of detox or withdrawal. I knew nothing of Suboxone. My doc referred me out, to a dr. who swears by Suboxone, the process began. For 6 days after stopping Methadone, I was put on Morphine, I felt no different really. My problems began on the 19th of December, when I took my second dose of Suboxone. I had showed up at the docs office at 9:30am, they slung a form at me that asked questions about opiate withdrawal. Some I could answer, but I couldn't see my own pupils, I didn't know what my BP was, etc... It was clearly meant to be a clinical assessment, not a subjective one. I felt a little sweaty, but I wasn't in withdrawal. I was told to come back later that day, at 5:30pm they gave me my 1st dose. Felt okay for about 1 hour, then started to feel like the flu was coming on. Called drs. office, told to take another Suboxone which thru me into full blown withdrawal. I called dr again, was told to take ANOTHER Suboxone (all of this within 4 hrs) and call him in one hour. I didn't take that 3rd Suboxone, I truly felt like I was going to have a stroke. But,I did keep trying it again and again, over a 3 day period. What I didn't know was that the Methadone can stay in your system up to 17 days, Each dose of Suboxone was gonna keep me in this state, until the Methadone cleared my system. I go back to dr., blood pressure thru the roof, diarrhea, chills, etc... Sure enuff, drug screen shows Methadone... God, it was awful. Thank goodness it's over.
For some reason, I can't tollerate the Suboxone. I tried 1 dose in 4 days, just to see. And 16 hrs later, my blood pressure was still 150's/90's....
So YES, I guess they were trying to transition me to Suboxone for pain relief. I was not able to tollerate it as a detox drug. I have another appt, just to see what else is out there. What I liked the most about Methadone, was it didn't knock me out. I don't want that, I just don't want to hurt so much. I'll keep you posted. Currently, I'm just on Asprin and Lyrica, for the peripheral neuropathy.
Last edited by Plain Paige on Sun Feb 26, 2012 1:05 am, edited 1 time in total.
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Re: I'm new and need advice...

Postby Plain Paige » Wed Jan 18, 2012 10:44 am

Hi All,

My foam mattress is on it's way, WooHoo!

Cancer was my 1st experience with Methadone, I thought it was a miracle drug. But, I had no idea about withdrawal because I had never run out. I was not given a taper option, when my dr said he was no longer rx'ing controlled subs, I got referred to the Suboxone MD... When I couldn't tolerate the Suboxone, he asked me for my bottle of pills? I gave it to him. I ended up having 30 tabs of Suboxone to try later, because it was close to Christmas and the pharmacy could only fill 60 of a 90 pill prescription. It didn't matter, I can't take it anyway...
I have Tizanadine, is that a muscle relaxer? I don't take half the stuff they sling at me, I'm scared to. Once I got sick, fear rules a lot of what I do. I'm gonna dig thru my pills and see what's what. Thanks everyone... you have been kind and helpful. I'm currently on Asprin and Lyrica, at least if I do end up back on Methadone, it won't be a decision made in desperation because my body is screaming for it. I'm hanging in there. After you withdraw from a drug like Methadone, you aren't so quick to hop back on that ship!!!
Last edited by Plain Paige on Sun Feb 26, 2012 1:09 am, edited 1 time in total.
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Re: I'm new and need advice...

Postby xenofears » Wed Jan 18, 2012 10:58 am

I merged your topics for you Paige.

Suboxone sucks for pain management.. nevermind if you are used to 60mg's of methadone. If your doctor thinks you have hyperalgesia and prescribed Suboxone for long-term purposes (i.e. not as a detox tool) I don't think he's very bright. All that Suboxone is going to do is keep you addicted to drugs (and you were on way too much methadone to switch to Suboxone AT ALL.) That said, a cold-turkey 60mg methadone detox is not a good idea either!

I'd suggest trying to find a doctor who will prescribe Dilaudid or Oxycontin... as a chemotherapy patient, I'd HOPE you would have some luck.. if not, that's really sad :(
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Re: I'm new and need advice...

Postby Not a 12 stepper » Thu Jan 19, 2012 2:22 am

Hi Paige-

Usually when someone takes opiates for pain (without abusing) they develop tolerance, but aren't the same as an addict. Maintenance on sub just doesn't make any sense for someone in your situation (in my opinion).

Like Pete said, sub is NOT a good pain med. I found methadone to be an excellent pain blocker, and it was still killing my pain after being on it for 8 years. But I was on 300mg per day when I finally decided to try a taper.

We're technically not supposed to "advocate" methadone, or any other opiate on this site, since this board is for people that are tapering, detoxing or in the planning phase... But sometimes people need opiates to be able to function with serious pain issues. I'm always hesitant to hand out advice to folks that have serious medical problems, but one treatment I've seen work wonders for people that suffer from cancer is medical Cannabis. It can be a great alternative to opiates, and can be used in different forms, to control a variety of symptoms, including pain.

Feel free to pm me if you want to chat in private (about anything at all).
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Re: I'm new and need advice...

Postby Sub zero » Thu Jan 19, 2012 12:07 pm

I see you mentioned having a migraine headache. I think it's pretty normal to get a splittin headache a day or so after your first Sub dose. I went on Sub on two or three different occasions over the years and every time I got a horrible headache on day 2 or 3. If you transferred directly to Sub from methadone, as I suspect, that can be downright nasty in itself.
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Re: I'm new and need advice...

Postby Plain Paige » Thu Jan 19, 2012 12:17 pm

I have thought about Medical Weed, but honestly, I live in Florida and no one has ever offered that to me. Does anyone know if Florida is that progressive yet? Otherwise, I can just visualize my mugshot now. I am NOT slick, and I'd stick out like a sore thumb. :geek: I know no one here is suggesting anything illicit, just trying to make a joke...
I also don't intend to go back on Methadone, unless I have no other options. Thanks so much for all the input, you have all been very helpful!!
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Re: I'm new and need advice...

Postby Not a 12 stepper » Thu Jan 19, 2012 12:31 pm

PaigeSurvives wrote:I have thought about Medical Weed, but honestly, I live in Florida and no one has ever offered that to me. Does anyone know if Florida is that progressive yet?



This link will get you up to date on the medical Cannabis issues in Florida-


http://www.mpp.org/states/florida/
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Re: I'm new and need advice...

Postby Plain Paige » Thu Jan 19, 2012 8:53 pm

You guys are an amazing source/wealth of information. Nothing helps so much as personal experience. The foam mattress topper is in place, looking forward to trying it out tonight.

So, I was put on Morphine-contin type med today. And 15mg Morphine IR , twice daily for breakthru pain, today. My BP is still very high for me, 158/92, never had a problem with high BP until detox'd off Methadone. This has to be another reason why they taper...

I know I can't stay on this medication indefinitely< or I'll be in w/d all over again, but a reprieve from the high BP, is good. I just pray that my body will hurry up and adjust to no Methadone. Going to check out medical weed, seems to be least off all evils.

Am feeling some relief from back pain and starting to feel hungry, so I'm hoping for a decent night's sleep. Thanks again, ALL of YOU!

Paige
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Re: I'm new and need advice...

Postby cheeps » Thu Jan 19, 2012 9:11 pm

PaigeSurvives wrote:You guys are an amazing source/wealth of information. Nothing helps so much as personal experience. The foam mattress topper is in place, looking forward to trying it out tonight.

So, I was put on Morphine-contin type med today. And 15mg Morphine IR , twice daily for breakthru pain, today. My BP is still very high for me, 158/92, never had a problem with high BP until detox'd off Methadone. This has to be another reason why they taper...

I know I can't stay on this medication indefinitely< or I'll be in w/d all over again, but a reprieve from the high BP, is good. I just pray that my body will hurry up and adjust to no Methadone. Going to check out medical weed, seems to be least off all evils.

Am feeling some relief from back pain and starting to feel hungry, so I'm hoping for a decent night's sleep. Thanks again, ALL of YOU!

Paige



Come back anytime...if you feel weird in the next couple of weeks....it could be that you are switching from a longer half life narcotic to a shorter acting one. Keep your doses steady timewise and don't get caught outside your area without some meds with you.
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